Learn More About Fluoroquinolones

Fluoroquinolones are powerful prescription antibiotics that kill bacteria. They do not kill viruses. Unfortunately, they are overused in hospital settings and over-prescribed by many doctors for conditions for which they are not effective. This off-label prescribing has led to widespread use worldwide and led to antibiotic resistance. Overuse has been promoted by pharmaceutical companies and has resulted in these becoming blockbuster drugs, i.e. pills and injections that bring in millions and even billions of dollars of income for each drug. These medicsaations, approved by the FDA, have injured thousands of patients unnecessarily.  Many victims have suffered painful physical disabilities or psychological impairments for life. 

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Books

Bitter Pills: Inside the Hazardous World of Legal Drugs. By Stephen Fried. Bantam Books, div. of Random House, Inc. 1998.

The author’s wife took one fluoroquinolone pill called ofloxacin and ended up in the emergency room, delirious. Their life was never the same as she continued to suffer physical and psychological adverse effects. During this emotionally trying time, Fried, who is an investigative journalist, researched and wrote Bitter Pills. It is a rigorously documented book about the entire pharmaceutical industry, government regulators, doctors and patients and was one of the first to question the commercial production and prescribing of legal drugs in the U.S.

Deadly Medicines and Organised Crime.  By Peter C. Gotzsche.  Radcliffe Publishing, Ltd., London, UK. 2013.

This is a powerful book by a noted British physician who worked with clinical trials and regulatory affairs in the drug industry and co-founded The Cochrane Collaboration, internationally-recognized as the benchmark for high-quality information about the effectiveness of health care. The book is a shocker, revealing inside information about what “crimes and misdemeanors” are happening in the pharmaceutical industry and the broader medical world and how we have become the victims.

Fluoroquinolone-Associated Disability (FQAD) – Pathogenesis, Diagnostics, Therapy and Diagnostic Criteria, Side-Effects of Fluoroquinolones. By Stefan Pieper. Springer, 2021.

Finally, here is a book, small but mighty, that convincingly speaks to your doctor in his language about exploring the diagnostic and treatment options for FQAD.  It’s written by a German physician who recognizes the serious risks of patients who take fluoroquinolones. Dr. Pieper bases his practice and his book on patients’ fluoroquinolone experiences as well as extensively-documented scientific and academic studies.  He listens, he empathizes, he explains. He presents the scientific data behind this ongoing medical emergency that has harmed so many.  Although adverse effects are rare in percentage terms, he says, they are frequent in absolute numbers due to the enormous quantities of prescriptions. He also notes that side effects are usually quite severe and wide ranging. Technical, but worth reading by FQAD sufferers who will be reassured that someone, somewhere understands and is trying to help them. 

Floxie Hope: A Journey Through Fluoroquinolone Antibiotic Toxicity. By Lisa Bloomquist.  Floxie Hope LLC, Durango, CO. 2015.

The author describes the toxicity that she endured after taking ciprofloxacin and the devastation that it can cause.  She heard disastrous stories from others who had been “floxed,” a term for those harmed by fluoroquinolones and includes their accounts. Bloomquist recovered after a three-year struggle.  What she found during those years were healthy ways that may aid in recovery and provide hope and healing. She shares details in this book.

 

The Hidden Dangers of Antibiotics.  By Jay S. Cohen, MD.  Square One Publishers, Garden City Park, NY. 2018.

Written by a nationally-recognized expert on prescription drugs, this book spotlights the hazards that this physician saw when his patients took Cipro, Levaquin and other fluoroquinolone antibiotics. He focuses on exposing the destructive capability of these particular drugs and their far-reaching harm, providing guidance on dealing with the consequences, and advocating for awareness and change. Dr. Cohen published an earlier book in 2015 called How We Can Halt The Cipro & Levaquin Catastrophe: The Worst Medication Disaster in U.S. History.

Nerve, Surviving Medical Madness. By Laura Buchman, Manuscripts Press 2024

This is a mother’s chilling medical memoir about how her hospitalized nineteen-year-old finds himself fighting for his life after entering the hospital for what should have been a routine, in-and-out visit.

In critical condition, with his life threatened and his health spinning out of control, she trusts the doctors and the hospital that are taking care of her son until she becomes aware that unnecessary procedures, tests, scans, and medications, including multiple doses of Levaquin, may have set off a catastrophic cascade of devastating health issues.

Nerve takes you on a terrifying journey as this resilient young man navigates an unfathomable health crisis that could happen to anyone. It's a warning for all of us how we should monitor the medical and hospital care we receive or that given to a loved one.  This book is a must-read for everyone, including the medical community.

Pharma: Greed, Lies, and the Poisoning of America. By Gerald Posner, Avid Reader Press, Simon & Shuster, Inc., New York, NY. 2020.

Well-researched account by an award-winning writer about the history of antibiotic and opioid drug promotion with its twists and turns as industry showed unconcern about the effects of continued overprescribing. The author details the innovative but sometimes unethical mass marketing activities pursued at Purdue Pharma that raised sales to stratospheric levels. The company, owned by the Sackler family, was deeply involved in deception. It was Arthur Sackler who first came up with ideas for the mass marketing of drugs, ideas which have become industry standards. This startling page-turner reveals how American drug companies have valued corporate earnings ahead of their patients.

Our Daily Meds: How the Pharmaceutical Companies Transformed Themselves into Slick Marketing Machines and Hooked the Nation on Prescription Drugs by Melody Petersen.  Picador, New York, NY. 2008

An eye-opening, chilling account of the pervasive and corrupt influence of the pharmaceutical industry in America, as told by a journalist who wrote for years about the pharmaceutical industry for The New York Times. Petersen connects the dots to show how subtle, far-reaching and dangerous Big Pharma’s powers have become in our daily lives. The author reveals how drug companies have seized control of American medicine by putting their marketers in charge. They invent diseases, she notes, in order to sell pills that “cure” them; they sway medical prescribing in powerful ways; they advertise at car races, on subways, in churches, and over and over on tv, a media where prescription drug marketing, believe it or not, is exclusively allowed in only two countries: New Zealand and the U.S. This book is one of the best early publications about Big Pharma. You’ll find shocking, disturbing details here not found in other resources.

The Risks of Prescription Drugs. By Donald W. Light. Columbia University Press, New York, NY. 2010.

This book tackles critical questions about the pharmaceutical industry and the privatization of risk.  Light as well as other contributing writers question inadequacy at the FDA, the commercialization of medical decisions and increasing medicalization of healthcare.  Light is a well-known  advocate for safer prescribing and better drugs.

Taking on Big Pharma, Dr. Charles Bennett’s Battle. By Julius Getman and Terri Leclerq. Skyhorse, 2023.

Dr. Charles Bennett, MD, PhD, MPP, our country’s most influential advocate for FQ safety, is the subject of this book. Bennett reveals explosive bombshells regarding Big Pharma, academia and law enforcement, brutal actions against leading researchers, including himself, who have identified significant findings against Pharma’s corporate interests. Bennett has a long history of revealing dangerous side effects of best-selling meds, including fluoroquinolones. He is Professor, Clinical Pharmacy and Outcomes Sciences Department, College of Pharmacy, University of South Carolina and Director of the Center for Medication Safety and Efficacy. This book is explosive and shocking.

A must-read for anyone who has ever taken a prescription drug. Rob Hennig, JD, PhD.

When a researcher responsible for “saving more lives than anyone in American medicine” is seen as a spoiler of hundreds of millions in Big Pharma profits, the stakes are extremely high—and the outcomes tragic. Terence Young, chair of Drug Safety Canada.



Whistleblower: The Case Against FDA Commissioner Dr. Margaret Hamburg & Renaissance Technologies Executives Peter Brown, Robert Mercer, James Simons by L. Martin, self-published. 2020.

It all started for the author with severe medical issues that were eventually traced to taking Levaquin. Extensive research into fluoroquinolones led her to team up with a noted drug safety expert to seek new FDA labeling and black box warnings for Levaquin.  Persistent pressure upon the FDA created some changes, but not all.  Further research revealed actions and a major conflict of interest against the top FDA Commissioner who seemingly had held up, delayed or discouraged Levaquin warnings during her tenure while she and her husband benefited from drug stock profits. This book details the author’s drug suffering as well as the her revelatory journey as she uncovered a case against the former FDA Commissioner and others.

Worst Pills Best Pills, A Consumer’s Guide to Avoiding Drug-Induced Death or Illness.  Simon & Shuster, Inc., New York, NY. 2005.

Compiled by nine leading physicians and pharmacists and the Public Citizen’s Health Research Group, this invaluable guide analyzes more than 500 drugs and designates close to 200 medications that should not be taken at all.  A large volume, this directory recommends drug alternatives as well as a list of ”10 Rules for Safer Drug Use”.

Support and Advocacy

Fluoroquinolone Antibiotic Awareness and Healing Alliance. The mission of this group of doctors is to help people heal from the affects of fluoroquinolone toxicity. The group aims to provide safe and effective communication and maintain a high level of integrity in the conversation around the treatment of FQ toxicity in the interest of healing. Its mission also includes the facilitating and disseminating of research, increasing awareness and improving knowledge of the issue in patient and medical communities. www.faaha.org.

Fluoroquinolone Antibiotic Toxicity Syndrome Network (FATSN).  A non-profit organization founded “by individuals whose lives have been forever interrupted and changed by severe adverse reactions to fluoroquinolone antibiotics such as Avelox, Cipro, Levaquin, Floxin.”  An international community that strives to spread awareness globally through education, advocacy and community support.  www.fatsn.org.

Fluoroquinolone Peer Reviewed Science, Journal Based Research Group.  This online closed group seeks to share peer-reviewed legitimate research and articles about fluoroquinolone side effects.  It posts current media reports, many from Canada where the organizers are located, and encourages victims to share their stories with the media. The organization holds an annual FQ Rally in Toronto, celebrates FQ Friday, and plans international conferences to increase awareness, report on research and share stories. https://www.facebook.com/groups/115966251889165

Public Citizen.  An independent organization that advocates for safer, more effective drugs, medical devices and other products as well as physician accountability and spotlights issues with Big Pharma. Staff testifies in Washington on health issues and supports important medical legislation. It monitors the Recall Unsafe Drugs Act introduced in February, 2017. Its Health Research Group was founded in 1971 by Sidney Wolfe, MD and Ralph Nader and produces a monthly newletter as well as forefront information for patients at www.worstpills.org. Public Citizen website: www.citizen.org

Web Sites

www.askapatient.com. Go to this website and type in the name of your medication to see comments by those who may have had a medical reaction to your drug.

www.ciproispoison.com. This is an angry yet reasoned account of the devastating experience one formerly healthy and active young person had after taking Cipro and the untold information he uncovered about fluoroquinolones. His story of a life ruined is not uncommon.  This website was established, he says, “as the warning I wish I had been given.”

www.diseasemaps.org. This site provides location and stats on FQ victims worldwide and wants to spread awareness about how this condition affects peoples lives. You can post where you live and details as well as take a survey.

fda.gov/Safety/MedWatch/. This is where you will find the FDA’s MedWatch online form for reporting adverse effects from taking fluoroquinolones. 

floxiehope.com. Locate information and resources here for individuals who have been “floxed” by fluoroquinolones.  Numerous posts from victims as well as media stories, links and resources. 

www.fluoroquinolonestories.com. Here you will find a collection of personal stories about experiences with adverse reactions to fluoroquinolones. The postings are organized by location so that media can access stories from their area of readership and use them with articles they write about FQs.

www.fqwallofpain.com Hundreds of victims of fluoroquinolones have posted their photos and heartbreaking stories of severe reactions and disabling conditions they experienced as well as many disbelieving responses from doctors, nurses, and ER personnel. Postings began in 2014.

www.fqresearch.org.  Site dedicated to presenting research, information and warnings about fluoroquinolone toxicity in order to prevent further harm.  Research articles are posted about adverse events and health issues.  Link to “Certain Adverse Effects,” a six-part movie about fluoroquinolones.

fqvictims.org. Resource of victim stories, articles on fluoroquinolone issues, link to MedWatch, news stories, resources and advocacy.

www.levaquinadversesideeffect.com.  “Hurt by Levaquin” site created by John Fratti includes extensive information about his long-term debilitating experience, details about the drug and its manufacturer, media coverage, medical references, links and advocacy. Archives extend back to 2008.

www.medicationssense.com.  Site established by the late Dr. Jay S. Cohen, a drug expert, to help patients and their doctors make informed, intelligent choices about medications to maximize benefits and minimize risk. Includes a list of books and thoughtful articles about Levaquin, Cipro and Avelox and details of his advocacy efforts nationwide on behalf of fluoroquinolone-affected patients.

www.myquinstory.info. Extensive information shared to enlighten the public on fluoroquinolones and enable informed drug choices. Includes a multitude of articles and opinion pieces. Valuable links. Created by a fluoroquinolone victim.

nabp.pharmacy. Site of the National Association of Boards of Pharmacy with lists of accredited online pharmacies. Find under Programs and VIPPS. 

openpaymentsdata.cms.gov.  Find out if your doctor or teaching hospital has accepted payments from industry and if so, how much and for what.

Facebook Groups

Antibiotic Damage!

Canadian Fluoroquinolone Foundation

Christian Floxies

Cipro Ciprofloxacin Toxicity Group

Cured to Death: Pharmaceutical Injury Stories

FDA Black Boxed Fluoroquinolone Antibiotics

FLOX CANADA

Floxed Activists Unite

Floxed Documentary Outreach

FLOXED or Maybe Not?

Floxed Treatment

Floxie Finder

Floxie Hangout

Fluoroquinolone Antibiotic Awareness & Healing Alliance

Fluoroquinolone Antibiotic Toxicity (Cipro, Levaquin, Avelox, Floxacin)

Fluoroquinolone Antibiotic Toxicity Syndrome Network

Fluoroquinolone Antibiotic Toxicity Wall of Pain UK

Fluoroquinolone Files Library

Fluoroquinolone Induced Mitochondrial Dysfunction and DNA Damage

Fluoroquinolone Induced Musculoskeletal Damage Group

Fluoroquinolone Peer Reviewed Science

Fluoroquinolone Poisoning

Fluoroquinolone Survival

Fluoroquinolone Toxicity Africa

Fluoroquinolone Toxicity Australia and World Wide

Fluoroquinolone Toxicity Study NFP

Fluoroquinolone Toxicity Support UK

Fluoroquinolone Toxicity Turkey

Fluoroquinolone Toxicity 24/7 Live Chat Group

Fluoroquinolone Toxicity Victims in Europe

Fluoroquinolone Toxicity Worldwide Group

Fluoroquinolone Twilight Zone

Fluoroquinolone Victims Assistance Group

FQ Survivors Marketplace

FQAD Fluoroquinolone-Associated Disability Public Group

FQAD Induced Via Metabolic Disruption

Hacking Fluoroquinolones

Healing Floxing from Fluoroquinolones

Iodine for Fluoroquinolone Toxicity

Legal Death - In Drugs We Trust

Life With Severe Fluoroquinolone Toxicity Syndrome

Long Time Floxed

Natural Healing for Floxies

Surviving Antibiotic Adverse Reactions Avelox, Cipro, Levaquin, Floxin

Take a Stand Against Fluoroquinolone Tablets, Oral Solution, and IV!!

The Fluoroquinolone Wall of Pain

Toronto FLOX (Fluoroquinolone) Public Group

*Plus, search for more geographical sites (29 of them at last count) such as the New England Floxies, Upper Midwest Fluoroquinolone Group, and numerous others listed by region or state.